Friday, November 12, 2010

Parents Advice To Other Parents - Newly Diagnosed Child

I asked a question on Facebook and I thought the response was great, so I thought I would make it a blog post!  I did not change the answers in any way except I did a spell check and I omitted their last names, they are also in the order that they were posted.  Here's the question;

If you could give one piece of advice to a parent who has a child that has just been diagnosed with autism, what would it be?

Kerry - I would say always believe in yourself as a parent, don't let others judge you or your child
Lori - You are your child's #1 advocate
Anne - I agree with Kerry - also, talk to other parents with autistic children - it makes you realise you're not alone and can give you good tips on how to cope - support is vital

Gaby - Start the Gluten Free-Casein Free diet ASAP! Look for support of all kinds: family, friends, strangers, internet, READ BOOKS specially the ones written by parents... this has helped me A LOT! I've read more than 7 books of autism. And, visit  the TACA website:
They have lots and lots of info. Good luck!
Dawn - There is help available; don't be afraid to ask for it. Asking for help does not make you weak, but the help you get can make you stronger.
Teri - Love them for the special people they are, and always try to see the world through their eyes....
Emilie - It will be OK.

Gillian - its what makes them who they are !! unique !!

David - Remember this is happening to them, not to you.
Flo - it's time to begin researching the subject. There are many books that will help define the subject plus guide you to advocate for your child. You will need a strong support system for yourself to endure YEARS of needs for both you & your child --- emotional & otherwise. Please give time to yourself daily. You deserve it.

Lee Anne - Find some support - a group, a best friend, another parent who has a child with autism, someone. It's a long road with lots of ups and downs and having someone to talk with REALLY goes a long way!!

Nicole - just love them for who they are and don't try 2 "fix" them they will teach you a lot of special things and you'll discover qualities you didn't know you had XX!!

 Sara - don't try n change them, talk to someone, take each day as it comes, count your blessings their special and bring their own love

Debra - Love them for who they are for they are innocent even as an adult ,have the patients of a saint and be very very grateful that you were the one god selected to have this very special person in your life for they love unconditionally.Can we???

Louise - don't give up, fight for whats right for your child otherwise you don't get anything! for my son Finn 6 years old Autistic, love you with all my heart xx
Marion - my personal advice would be to have a great deal of patience and a good support team ....with time and a lot of work it actually gets better 

Kellie - my advice would be to not let people push your child into therapies that may not be right for them. Celebrate the little things and remember your child is not broken, needing to be fixed, maybe they are exactly how God intended them to be. Therapy should help your child be the best "they" can be not change who they are. 

Gion - My advice would be to look at progress in small things and when you look back at his achievements you will realize they were paramount! 

Ana - Never give up. 

Elizabeth - Have lots of patience and give lots of hugs and most of all don't look at the label.Forget about the word Autism and look at all uniqueness of your child.I guarantee that child can do and excel at at least one thing that a child not diagnosed with Autism cannot do. 

Carrie - They are children before anything, they just need to be heard differently. Time, patience, and understanding helps. When they have a melt down just remember they can't help it, calm them down by hugging and rocking. That always helps my son. They are special people they will exceed, my son was severe now he's mild with... autism, that took years of speech and occupational therapy. I love to be blessed with my son, because god knew I would be able to handle it. He amazes me everyday, always something new, and it is great. Like Ana said never give up, they need you and you will find you need them. I don't do shots or give him drugs to calm him down, therapy can help you without harming them just to make them be quiet, remember they just want to be heard and sign language helps, baby Einstein DVDs are great because of the music. Just ask for help, don't let others make you do something, if you don't feel it in your heart don't do it, you know what's best for you child. 

Leah - My advice would be to remind them, this is the same kid they loved before the report.. AND as most kids are diagnosed around 3/4.. I'd tell them that those ARE the hardest two years (experience and what others parents say) it does get easier.. it becomes awesome and fun and enlightening and differently wonderful than... you ever could have imagined. Be gentle on yourself, love big.. ask for help!

Thanks for all the great advice!

1 comment:

  1. Get EDUCATED as soon as possible read about autism. the more you LEARN the more you can help your child! you are their #1 ADVOCATE!! also learn of all the THERAPIES that they could benfit from like, devlopmental, occupational,& IBI. also get your self some therapy & MORN for your baby.. because they may not do the things you have DREAMT for them to do. but with YOU as their PARENT they will have a chance!! You was choosen to be this childs parent for a reason because you are STRONG! Also get lots of REST if you are tired then you will miss TEACHABLE moments. get a support going for you to have breaks this is of the upmost important because autism never rests. work hard with building a good STRONG RELATIONSHIP with all your childs therapist & with the school make sure you all COMMUNICATE very well! because this is the TEAM who will help your child succeed! if you all are on the same page your child will succeed in life with autism! I am a single parent of a child who lives with autism he was 3 when diagnosed he is 7 & thriving very well! these are the things i have choosen to do to help my child SUCCEED with autism.